Living with dementia: Social relational perspective to sustainable care

We examine:

what it means to live with dementia,
what kind of social and institutional barriers and risks of care poverty are faced by persons with dementia and their family carers, and
how their participation and agency should best be supported on the level of daily life, social participation and care services.

Project description

In this project, a consortium of researchers from the University of Jyväskylä, the Finnish Institute for Health and Welfare and Tampere University outline socially sustainable care for persons living with dementia, either in ordinary homes or in care facilities, and their informal carers. 

The aim of the project

We develop a social relational model of dementia that takes into account not only the individual perspectives but also the social and relational aspects. Finally, the empirical research involving people with dementia and their family carers and developing the theoretical model enable gaining profound understanding on how to organize and promote socially sustainable care and services for persons living with dementia in national care policies and local care provision.

Publications

Project members